There hasn't been an #IBDChat on Twitter for a while so the last hour or so has been quite enlightening. We may have strayed from the original subject of "the causes of IBD" but it gave a good indication of the subjects that sufferers are concerned about.
conversations were mainly about the physical aspects of IBD and it
wasn't until close to the end that any psychological aspects were
mentioned. It does seem to be an area that needs more open discussion
both inside and outside the IBD community. For some sufferers the
psychological effects may be even more debilitating than the physical
I have used the hashtag #crohnspatterned to describe how I
feel Crohn's has affected me. When I checked to see if the tag had been
used by anyone else it turned out to be unique. I'm sure the phenomenon
is far from unique and will affect sufferers of other chronic conditions
Let me make it clear that I have escaped pretty lightly
both physically and mentally but the experience has been enough for me
to realise how things could escalate. I'm starting to feel that Crohn's
now has me patterned like Pavlov's Dog.
(Just in case anyone is
unfamiliar with the story of Pavlov's dog here's a three sentence
version. Pavlov was a Russian psychologist born in 1849. As part of an
experiment he found that it was possible to condition a dog to associate
the sound of a bell with receiving food. The dog, eventually, would
salivate at the sound of the bell in anticipation of the food.)
have a variety of "bells" which act to trigger my digestive system into
action, unfortunately we're not just talking saliva. The main triggers
are the alarm in the morning; that chiming sound on public transport
that heralds the "this train is about to be delayed for an indeterminate
time" announcement; the sound of my car starting as I am about to
embark on a long journey. So far I have been able to control the
effects by extra Loperamide capsules (Imodium) and mind over matter but I
can envisage a time when they simply are not enough. Maybe this is all
linked to having a "second brain" in our gastrointestinal systems and
the triggers are affecting it.
I made a comment on
the #IBDChat that I find the use of words such as “poo” and “pooping”
when discussing IBD rather demeans the subject and makes it appear less
serious than it is. Just my opinion. You may or may not agree but that
leads me neatly onto….
I will admit to preferring the medium of
blogging to vlogging. Why? Because I can read and concentrate on the
content without being distracted by the colour of the curtains in the
background or the appearance of the vlogger, etc. Maybe it’s a
generational thing as selfies don’t do a lot for me either. Whatever.
fellow IBDer asked me if I’d ever watched any of the IBD vlogs on
YouTube and I had to admit that I hadn’t. They asked me to have a look
at a particular one and asked my opinion of it. Now I am not stupid
enough to name that vlog here or what the subject was. I don’t want to
start some internecine spat within the IBD Community but. ….
found the vlog, hit play and sat back to be educated or enlightened.
After a few seconds I started to ask myself if it was a joke or some
kind of spoof. I discounted irony. I kept watching. It made me feel
uneasy and I started wondering what benefit it added to our IBD world.
If this was meant to be adding to the cause of IBD awareness then it
If you are going to make an IBD vlog then please make it
relevant and don’t cheapen the subject. Nuff said. Can't see myself
making one anytime soon.